Today was a day of ups and downs - fortunately ending on quite an up.
In this mornings note I said that he has fought himself free of the breathing tube (this picture was taken this morning). Shortly after I wrote that I went back in only to find it in again. He was apparantly struggling too much with his breathing.
Subsequently we learnt that he was not really processing his food. Using the aspiration tube they discovered that after 2 feeds (of 5 ml each) he had 10ml unprocessed in his stomach.
This evening while we were there during the doctors round we questioned when they would do further tests. In short they do not want to for at least 2 weeks. We really couldn't get a good reason why. They very much want to see him process the fluid himself. We found this a tad frustrating to be honest. Then to further frustrate, we asked if his urine production was normal, and the doctor said no, it was high because of the problems with his kidneys (what problem with his kidneys?). After persuing this it would appear that his kidney function has been steadily improving since birth and isn't something to be concerned about.
Actually, at this point, Jules and I were feeling a little sad. After the progress of yesterday we began to build great hope of a very speedy recovery.
On a positive note to end the day, when they went to feed him this evening, he only had 2ml of unprocessed milk in his stomach. On top of that Julie got to feed him this evening. The final bit of good news was that his girth had remainded constant throughout the day. No afternoon expansion. I am very hopeful that tomorrow morning we'll have a sub 39 girth.
Please continue to pray for Will and for his speedy recovery. Please also pray for Jules and I that we will remain in good spirits and that we won't let small setbacks dissappoint us.
5 comments:
Harry & Jules,
my heart goes out to you during this roller coaster of extremely emotional highs and lows. We continue to pray for both of you and for Will.
Praise God for the apparent stability in Wills waist, and I am praying that Will continues to produce enough waste to help keep him on the road to recovery.
the video of Will having a bottle and the last lot of photos were great. I especially love the photo where Jules is nursing Will and he is looking up at her. Very beautiful and very special.
Love to you all and big hugs and kisses to Jack and Cleo.
Evelyn
Hey guys. Thanks for the update. Praying with you for a steady "up" day tomorrow.
Brett and Shannon
Harry & Jules,
I am sorry today has been such a roller coaster but am very glad to hear that it ended up on a positive note.
Another preemie mom on Hannah's Prayer (a Christian infertility and pregnancy loss board) said something very insightful to me in response to one of my post. I would like to share it with you guys - "From my own experience, I would say that, no, you won't be as "carefree" as you were before. Having to suffer with Isaac through a longterm NICU stay will change how you view life, even before you factor in losing Rachel. Personally, I know I changed after having DD (Dear Daughter)too early. My acceptance was a long time coming, but I finally realized something positive could come out of something so negative. In the last 5 years, I have learned what really matters in life. I have more compassion for those truly in need and less patience for those who just think they are. I take nothing DD does for granted, as I know I would have, had she been FT (Full Term). Because of what I have learned about just how easily things can go so wrong so fast, I don't even take anything my FT DS does for granted either. I don't see how someone who has been through what you have could go back to the way things were before - but your new "normal", painful as it is, has much to offer too."
It is an emotional ride and we definitely see a rather direct connection between our emotional ups and downs with how well Isaac was doing that day. I feel that God really uses the NICU roller coaster ride to command us to surrender to Him. Its really tough during the ride but we are so blessed coming out of it. Each time I despair and doubt, God is ALWAYS there to pick me back up. He is faithful and merciful. He is good.
Continuing to pray for Will, the two of you and Jack and Cleo.
Hugs,
Sonia
Hi Jules, Harry
Kerry from Dublin here, sorry for delay, email address old.
Heartfelt love, prayers and tears for you all. I found Romans 12:12 a great help: "Be joyfull in hope, patient in afflication and faithful in prayer" a great rock to cling to. I see you are all these things and more, but on any day we are supporting you in these thoughts a hundred times over. It is easy to be joyfull in hope looking at the little fella; he looks so big and strong and clearly fighting to be a well Will! I agree with today's comments, this experience has already changed your lives in way nothing comes close to. But our Samuel is testimony to that being a positive change in all our lives. Sure there are still tears but our prayer that he would remain in God's will was the only important one, and so it is that we in turn join your prayers and celebrate this little life.
Much love Jules, Kerry
Hi Guys
Sorry to hear u had such a frustrating day, we hope and pray that today is a better one, and little Will keeps improving. Will's very like Josh as a newborn except Will has darker hair and more of it.It's important that u and Jules remain positive, I know it's hard, but remember that Will has already come so far! Babies and kids are so sensitive to where their parents are at emotionally, so it's so important to focus on the positive, be excellent to one another (Bill and Ted's bogus journey) and May the Force (Spirit) be strong with you! Hope this gives u a smile
Love to u all and hugs for the kids
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