An afternoon visit

Both Julie and I have spent time at the hospital separately this afternoon / evening. We are trying to spend time with Jack and Cleo to make sure they don't feel completely ignored by their parents. Will is continuing to look better. Still of course the issue with the bloated tummy, but they have removed one of the IV tubes in his hand so he now has a free hand. Removing this has given him a new level of freedom. I managed to snap a one handed photo of him holding my hand. All things going well, tomorrow may be a big day for Will. They're considering taking out the ventilator completely. Of course this will depend on how he goes tonight on the reduced support level, but its great that its even a consideration. They're also talking about giving him milk for the first time tomorrow, which is a bit faster than we expected. Not sure how they determined he was ready for this, but again I'll take it as a good sign. I've had a few independant questions on Will's condition, so I figure I'll just answer them here. Firstly, it would appear that this is a very very unusual case. While Ascetes is not that uncommon, the type Will has seems to be a one of a kind. None of the Doctors have seen this before, and I've been asked if I can provide all my video and photo evidence for training purposes. Likewise there is very little reference to this in any other case history the Doctors have been able to find. Secondly, the small black marks on his tummy, are just texta marks. They are the guides for measuring his girth. He's had a small needle in his tummy to remove some fluid for the initial test and that's it. Finally, how do they expect the fluid to dissipate? Good question. They've indicated that the body will "process" it over time. How, why, ???? Don't know. Today's video shows Will moving around a bit more, and shows how much more freedom he gets with the hand freed up. 24th May Will with a free hand