Request denied

For those who are logging on to see if Will has had a reprieve and can come home again, I'm sad to say our request has been denied. The pediatric surgeon is quite conservative and is a little nervous that if he lets Will go home again the chance of the catheter coming out or becoming infected is too high. I can appreciate where he's coming from and he only has Will's best interests in mind but it was hard to hear "no". In some ways it is harder having had him home. This sounds odd I know as we should just appreciate the time we got to have with him over the weekend but until then Will had been "Will at the hospital" not "Will, part of the family, in his own bed". It is hard to walk past his change mat or bassinet and do a double take because he's not there. Still, it is in his best interests and I am praying this week will fly and he'll be home again in no time. I'm back to the routine of expressing, driving and feeding. Please continue to pray for the Jack and Cleo as I will be around less for them. They are still handling things extremely well, not whinging and being very understanding when we tell them someone else is picking them up or taking them to x, y or z. I am so thankful to God for their mature response to Will's demands on our time, especially since they are both going through the emotional difficulty of having a brother in hospital. God is being so gracious to them and lifting them up every day. They too are leaning on Him, praying regularly, not just at bedtime and realising He can help Will and them. OK, must go and express, aren't you all envious of my new and exciting routine? I know you are, you can't deny it! Take care, love Jules.